Report from Rare Disease Day 2014

By février 28, 2014FR

PI attended Rare Disease UK’s reception in parliament last week.  Liz Kendall MP  hosted the meeting, with Health Minister Earl Howe giving the keynote speech, making several announcements on how the NHS will manage the profile, diagnosis and registration of rare diseases. He also outlined how the government planned to implement the Rare Disease Strategy. Full report is here.